26 March 2010

Friday! Friday! And after 10:45, the first day of Spring Break for Julia. I intend to have a week long week end -- sleeping late, long breakfasts, walks, a touch of gardening, maybe a movie, and playing, playing, playing with Julia. She needs it and so do I. In the rush of the last three weeks, I have spent very little time on the floor playing little pet shop, dinos, or doll house. She really gets plenty with her therapists, but it is mommy that misses it.

David went to his first working PT appointment today. He exercises for about 25 minutes in two chunks of 10 and 15 minutes. He will be exercising 3 times a week and the PT expects that he will be doing an hour and a half very soon. The rehab clinic is also near to our YMCA, and so, this will be a perfect time for me to use the gym. I can do an hour and have plenty of time to get back to David.

Did I report on the biopsy yesterday? David had no sign of rejection again this week. Two weeks of good biopsies means a drop in his prednizone -- a small drop to be sure but since it is that drug that is causing many of his current ailments under the name of side effects, he is hoping for less of those side effects. The prednizone is reduced to nothing over 6 months if the biopsies are clear, and most patients are finished with us within a year.

David has also finally accepted that he will not be back to work within a week or two -- yes, he wanted to be! The docs prefer that if he is feeling well enough to expend energy, the energy should be spent on physical exercise. So, PT over desk work.

Julia's behavior continues to worry, but I talked it over with Marilyn and she feels that much of it may be Julia's delayed reaction to all the stress. I am hoping that this next week we will be able to get our little threesome back on the same page.

2 comments:

Snickerdoodle said...

Re: Julia's stress levels...yes, it's often "after" the stressful event that children display their behaviour/stress reaction to the "event". We do the same thing, I think. We muddle through the event, then sort of fall apart later, when we can. I think it's a typical human reaction. A self preservation type of thing.

She'll be back to her normal self in a week or so.
Best,
Snick :)

Adelaide Dupont said...

Glad you are having Spring Break so early in the morning.

Delayed shocks ... I so get that! Especially one Spring/Easter break that a sixth-former hurt my hand with a ball.

Hope David's having some great PT exercises!

Next week is Autism Awareness Day (2nd April 2010).

Meanwhile you two need the play!