Julia did not have a great day at school, and boy, is she ever hyper tonight. But, but . . . she is more herself than she has been for weeks. She has been testy, sweet, bright, flighty, nasty, and loving. Right now, she is even more responsive in her round about way. All in bigger proportions than we've seen in awhile. Giving a drug, not giving a drug -- this is hard! Yes, Julia needs to be able to regulate herself, but how much of her do we lose when we do that.
Big questions about giving up disability, limiting behavior which could limit creativity. And I know, I know, she has to slow down enough to be able to create and live in the world. And learn to read!
I could have both sides of the conversation raging inside my head and still not figure anything out. Yesterday, I was more willing to play with Julia's head to get to some sort of normal, but I had not had any sighting of that spicy dragon who we put to sleep for a little while.
Julia's morning was good. She did her work and seemed to be going along pretty well, until she was supposed to put on her snow pants for recess. Then, she refused with lots of noise and hitting, and ended up in time out with no recess at all. During lunch, she entertained her table with stories of dinosaurs who catch bunny and yank their heads off and eat them whole. When this was unappreciated by a fellow student who asked Julia to stop talking about dinos who ate bunnies, Julia spit juice at the girl and threw the juice box at her. So, not a good lunch.
Luckily, I picked Julia up for OT and speech before she burned down the school.
At OT, Julia was distracted but was able to follow Annie's direction to cut out snowflakes. I am hoping that we can make more at home to tape on the windows. During speech therapy, Julia was able to answer the W questions about a story -- something that she could not do last year. She also played a low stress game with play dough, body parts, and cards. Julia played the game without getting lost playing with the play dough.
And tonight, two therapists built wooden puzzles with Julia.
Julia is talking louder than usual -- like she used to. She was in motion all evening, and did not slow down until she hit the bed. David put her to bed so I have to find out if she mellowed out or if she crashed.
Tomorrow, she will be down to .5 mg of guanfacine.
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